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Parkinson's Foundation Invests $60,000 to Develop Innovative Models of Patient Engagement

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NEW YORK and MIAMI, Nov. 29, 2017 /PRNewswire-USNewswire/ — The Parkinson’s Foundation is pleased to announce $60,000 in funding for six innovative patient-centered research projects.  The awards, the first of their kind in the Parkinson’s community, support patient-scientist teams in their efforts to develop innovative models of patient engagement.  The projects are supported through the Parkinson’s Advocates in Research (PAIR) Leadership Awards.

“As a leader in the patient engagement space, we are proud to support researcher-patient teams who are developing innovative ways of working together,” said John L. Lehr, chief executive officer of the Parkinson’s Foundation.  “It is more critical than ever that we guide research to better meet the needs of our community, and including patient voices is key.”

PAIR Leadership Awards are an extension of Parkinson’s Advocates in Research, a pioneering program established by the Foundation to advance researcher-patient collaborations.  They reflect the foundation’s commitment to targeting research to meet patient needs by building collaborations between scientists and people who live with Parkinson’s disease (PD).  Awards are available for up to $10,000 for patient-centered research projects. 

Among this year’s awardees is a team from Emory University School of Medicine, a Parkinson’s Foundation Center of Excellence: Madeleine Hackney, PhD, and Ron Wincek, a foundation research advocate who lives with Parkinson’s. Their project, “The DREAMS Team: Galvanizing Research Participation in the Parkinson’s Disease Underserved Community,” aims to train underserved older adults in the PD community to serve as advisers on study teams and to aid recruitment efforts of underserved participants with PD by local clinical trials.

“Over the years, our team has found that patients have valuable and often surprising insights that can improve our work in research, care and support,” said Dr. Hackney. “I applaud the Parkinson’s Foundation for investing in our efforts to encourage research participation in underserved communities.”

2017 PAIR Leadership Awards:

Development of a Virtual Case Manager for People with Parkinson’s Disease
Bastiaan R. Bloem, M.D., Ph.D., Radboud University Nijmegen Medical Centre, Parkinson’s Foundation Center of Excellence, Netherlands
John Andrejack, Parkinson’s Foundation Research Advocate Optimizing Mindfulness Based Stress Reduction Program for Accessibility, Feasibility, Comfort, and Effectiveness for People with PD
Michelle Burack, M.D., Ph.D., and Dan Kinel, University of Rochester Medical Center, Parkinson’s Foundation Center of Excellence PAIRing up to Address Neuropsychiatric Concerns in Parkinson’s Disease
Jennifer Goldman, M.S., M.Phil., Rush University Medical Center, Parkinson’s Foundation Center of Excellence
Don Simmonds, Parkinson’s Foundation Research Advocate The

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